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Living with a Chronically Ill Child

Mary is a 14-year-old girl who was first diagnosed the type 1 diabetes mellitus when she was 7 years old . She lives with her parents and two brothers. I need to interview her and her family members to gain insight into the experience of living with a chronic illness.

The impact of the illness on the person

Once a happy, playful child, Mary is now moody, and occasionally she doesn't comply with her treatment regimen. She always thinks these medicine can¡¦t cure her disease just alleviate the symptom. She grieves her loss such as former good health; independence and sense of control over life; sense of self-confidence and self-esteem; plans, dreams, and goals for the future; fantasy of immortality; familiar daily routines; health and life insurance. She reveals typical adolescent concerns, like finding the "perfect" boyfriend. The worst of all, Mary developed a phobia about her body and its illness, both of which seemed unpredictable and out of her control. she worries about one day she will die.

Mary has many friends. Though active with schoolwork, girl talk, and painting, her days are interspersed with medication and insulin injection.


Her parents are loyal Christian. She went to church with her parents every week since she was born. But one Sunday of last year, she Cried to her mother: ¡§ where is god when I need his help¡¨? She threw all her religious books and tapes and from then on, she has never been to church. Now she spends most of her spare time to read medical books. She said she believed science and she wants to be a doctor and cure her disease. She said she has confidence to conquer the disease.

*Addressing pertinent concerns. For example, sexuality is a normal developmental concern for all adolescents, but it can present special challenges to those with disease. Listen to the specific obstacles that your patients' conditions may cause so that you can provide individualized counseling or appropriate referrals.

she said the disease had limited her social activity. "I hate taking these medicines," cried Mary, "I look different from everybody else at school-like a stick with E. T. fingertips." She said she doesn¡¦t want her parents administering insulin in front of her friends anyway.

* Advocate verbal communication, and promote coping skills and stress management. Teens need to share their feelings with other adolescents faced with similar conditions.

Chronic illnesses force adolescents to face limitations. Nurses can help by educating them about their disorders and the challenges they may encounter, and by offering nurses¡¦ counsel and support. By teaching them what to expect of themselves and their conditions, Here are some other ways to empower teens:

* Promote independence through self-care and decision making; allow them to make choices. For example, Mary can participate in her care by structuring her medication regimen, making her own appointments, and contacting community resources-each decision increases her feelings of mastery and control.

Some topics in this essay:
Introduction Mary, Role Changes, Intervention Nursing, Altruism Altruism, Ms Smith, Independence Independence, Response Mary, nursing intervention, impact illness, i've grown, adapt situation, chronic illness, illness family, complex medical, nursing care, diabetes mellitus, cure disease,

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Approximate Word count = 1413
Approximate Pages = 6 (250 words per page double spaced)


  

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