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Discovering My Epilepsy

My mom never paid much attention to it and thought it was just a quirk I had. As I grew those behaviors were still happening and I was getting to an age that made it clear that those behaviors were not normal, and that is how I ended up going to a neurologist. The first test the doctors gave me to determine if something was wrong was an EEG. An EEG is a test used to detect abnormalities related to electrical activity of the brain. This procedure tracks and records brain wave patterns. Small metal discs with thin wires are placed on the scalp and then send signals to a computer to record the results. These tests might be the most annoying thing in the world. There are wires glued to my scalp with tons of gauze wrapped around my head like a present, and carrying a box that is recording the waves the wires pick up. I have to wear this all day and all night and I'm able to take it off the following morning. Taking the annoying test off my head is another struggle in itself. After having the doctors review the recordings they determined it was absence seizures and that is when the medicine started to be prescribed. Personally I wish I could go back and leave the whole seizure thing alone because the medicine symptoms are worse than the actual seizure. I've gone 16 years not even knowing anything was happening to me so I don't see why I cant just continue that way. For over a year its been like trial and error with medicines and feeling like a test bunny. I would get a new medicine, start at a low dose and slowly increase the amount. There is always a point in the high dosage where all the symptoms come at me at once and I'm then taken off that medicine, put on a new one and the cycle starts again. The first medicine I was ever put on had depression-like symptoms and I was taken off that one very quickly. The most recent medicine I was taken off of had big, bold letters on the bottle that said CAUTION: BLURRED VISION! And that is exactly what it did to me, I hit a high dosage and my vision would start to spin.


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